Wednesday, September 14, 2011

Developmental Pediatrics

This morning, we went to Jule's Developmental Peds appointment. I could not wait to get there and get it over with because I was really getting confused about what is going on with him. He loves his new school, but they have also been having problems with him. They did not say they think he is autistic but said they thought he should be evaluated because he screams frequently for no apparent reason. They said he often screams when the other children get anywhere near a toy he is playing with. They told me all of this Friday, and to say I have been stressed out is a huge understatement. Whether Jule had autism or a developmental delay or whatever else would not change my love for him or my determination to help him in any way I can. It's just that I am SO physically limited with my migraines, and I didn't know how I would physically be able to handle even more OT appointments or take him to another school that involved further driving. It is not out of lack of desire, but out of my physical limitation.

Much to my relief, Jule is not even on the autism spectrum. His developmental testing came back at his age level, so there is no need to take him back at all! To hear those words made me feel like I could breathe a little again. Now, we need to work with his school to help him learn not to scream. His new school is amazing, and they treat him with love and kindness even though he is difficult. He still loves going every day, which makes us very happy! The Peds Specialist thinks he has had so much physical pain and sickness in his 3 years of life that he has just learned to scream. Whether it is for something he wants, doesn't want or is in pain, he screams. Because he is very determined and strong willed, it could carry on for hours. So, she suggested a book for some ideas since we have not been able to come up with anything to truly stop him. I do not want to break his strong will. He needs it to do what God has called him to do. But I want him to learn to express himself without ear-piercing screams. I am praying that God would give us and the school wisdom on how to work with him to help him. I am also praying they will remain loving and have the patience to work with us and him through it. I am still nervous that there will come a point when they will have to kick him out, but I'm praying not.

Solomon talked a LOT about wisdom, and my prayer is for wisdom and God's insight on how to help Jule become the man he needs to be.

1 comment:

John Ng said...

Know that your prayers (and others on your behalf) are being answered by the Most High God. This is a journey and you are not alone.